What does that mean?
The only true way to relieve invisible harms and hardship in our communities is to tune to the voices of those least heard, those most devastatingly being hurt.
Our methodology has been developed around this first most important point to serve all those undeservedly excluded from community safety.
Survivors who reach out for help, having been told something will be there to help them, often suddenly realize that there is nothing…
…except the crucial solutions that we survivors of severe disability have been building.
We say “self-identified Survivors of Severity” — and though challenges have kept us from framing this more specifically, we have started to collect the intersections we find ourselves experiencing most frequently.
Major problems are created when severely disabled people cannot rely on non-disabled people to ensure consistent communications and community interactions.
When we cannot maintain consistent connections, it becomes much harder to communicate successfully. Often, severely disabled people have no way of communicating with one another because their communications with non-disabled people are already so compromised.
It has been important over these last several years for me to be profoundly careful what I say and about whom, especially as I am striving to support that person.
Part of severe disability for me is that if someone feels upset or offended by something I say, even unwitting, and if they respond without awareness of how my physical body is affected, their response can be fatal to me within days.
For a long time, any opportunity where I might speak up for someone else’s safety, because my continuous physical suffering has been so great, I might make a neurological mistake that puts them in greater danger instead.
It’s one of many reasons we needed a collaborative, inclusive, access-oriented public radio.
I must constantly educate others about the intersections I’m experiencing so that I can continue to be alive on this planet on a day-to-day basis.
To continue to be alive, I need reliable communications access.
Hi. I’d like to talk about racism.
I’m afraid to talk about racism, because the circumstances in which I was trafficked were circumstances in which it was unsafe for me to speak up about this and related subjects.
Most of the people who stopped me from speaking up about racism, however, were people posing as or believing themselves to be supporters of marginalized people — some of them specifically considering themselves anti-racist.
Because people in and around advocacy communities submitted me to such violence, part of my complex neurological injuries is a scramble of how to determine whether a person who presents themselves as helpful will actually be helpful, or may turn out to be someone with intent to do harm.
What is required to resolve this injurious neurological scramble is a clear litmus for the awareness, caring, and communications intentionality of those I’m interacting with.
What I need to know from each person is exactly what I was stopped by force from knowing — whether they would deny causing harm to me or another, whether they would protect the safety of those most vulnerably at risk, whether I with severe disabilities or my colleagues in greatest severity could rely on a fully respectful dialogue with the person.
I had some basic feeling understandings that individual, systemic, and internalized racism was at the heart of what was going on in those communities, but as my brain function radically declined and dangers increased, I was unable to speak to it verbally.
I am able to speak to it more verbally now, so I am committed to success in it.
And now is long past the freaking time.
Thank you to everyone who has been so patient and supportive in regards to my severe neurological effects on Facebook.
I work very hard to cultivate a sense of normative narrative for those who need it, which means that — every time I show up in public, especially if I’m using Facebook — I am minimizing and hiding severe symptoms to a profound degree.
Doing this work makes me much sicker, and at the same time, I will not survive without establishing a reliable personal income stream.
(To underscore this last statement: I do not have *any* reliable income stream and very rarely receive donations. On a daily basis, I am without crucial emergency supplies, safe food, clothes, shoes, health interventions, and disability aids while too ill to care for myself, and frequently do not have money to access the most basic solutions to prevent suffering.)
If you’re hearing from me in public, I am almost always *faking* greatest possible function, struggling through physiological severity to make it happen. The moment I go offline I am much sicker than when I started.
When you hear from me in public or when you think of me, please check on me.
If you don’t hear from me in public on a given day, please check on me.
The symptom cascades I experience from daily exertions are extreme. Without support, my body can die of complications within days.
I really, really, really appreciate people who check on me.
If you value the work I’ve been doing through personal and cultural apocalypse, please consider sharing a little of what you have here: https://Intuitive.community/donations
If you want to help in a non-financial way, please read this page, participate (please and very thank you!), or give me feedback if you are able: https://Intuitive.pub/support
Thank you for courageous heart-lights shining. I am feeling it — in miraculous ways, it is sustaining.
I was little when I learned the word “eisteddfod” and a little older when I learned the plural, eisteddfodau. The final syllable is pronounced to rhyme with “eye.” Those two Ds in the middle are a TH sound, like “the.”
We had a Welsh alphabet hanging in the house amidst carved wooden love spoons, photographs, heirlooms, and family mementos; all that survived the circumstances we’d grown through. I knew a little of where those things came from and what they meant.
I was much older when I came to understand more about what had happened to the Welsh.
All the eisteddfodau I engaged with and all the kind people who supported me, but I didn’t anticipate this kind of apocalypse. As I reclaim those neurons… rediscover those communities for what they are now, and possibly what they meant to me previously… there is a distinct absence of group singing.
Not for a lot longer, though, I think.
All the instruments are broken, but some of them still sound.
Slight and tuneful clip-clops of natural movement through quiet streets, the Internet brought to me.
Those are handsome goats. Let’s wish them well.
I never was in North Wales, though I tried. I was south in Swansea, then a few years later, Ebbw Vale.
I was wandering through little alleys, bridle paths, hills and havens; early in the misty morning, I went running. The mountains were broad and tall with clouds among them. The green and growing things shared energy with me. Awen and Nwyfre, I should think. And I do. These are memory nutrients with deep roots.
The photos I took then are blessings to me now without me having even found them. They made profound impressions. My cells hummed.
Really, everything was humming.
Intuitive Public Radio is an Internet-based public health art and advocacy project that I have been working on with international friends and colleagues for a number of years.
One of the things we have done each day is to imagine together the lives of microbes.
The lives of microbes and our own lives are so interconnected — especially for those of us who are aware of how we and our microbes eat together.
Understandings of microbially healing foods and safe fermentation practices strengthen our communities and those we have been reaching out to, especially at this challenging time.
To talk about this on a public platform with kindness, solidarity, and a healthy dose of whimsy (you must know!) is restorative to all of us including and especially many very scared people and whole communities suffering in pain or confusion.
My own healing journey has required deep emergency education about fermenting every possible food I can ferment.
A crucial part of restoring my function after digestive failure has been in building relationships with the populations of tiny people in the cultures I am fermenting — friends and neighbors to me, sharing food with me, sharing their lives with me even invisibly.
This food based relationship building has also been a relief in prolonged isolation and a means of recovering from trauma, all of which many people are newly experiencing.
In community, when we imagine together what we cannot physically see, people who are struggling find they can learn and develop new skill sets more easily.
This is a leverage point I have used to come back from neurological injuries a number of times, and has proven life-saving for us to remember on a daily basis.
More notes available at Intuitive.Social/Kitchen 🌿🥦🥬
Rob Talbert of Run Like Hell Productions and Cercle de Meurtre joins Max Morris and Intuitive Public Radio to talk about about horror film-making, art, trauma, & fiction in our decidedly non-fiction apocalypse.
(Videos will appear here as they are uploaded to Intuitive.pub/TV. Check back for links and embeds for our Anchor FM episode and more upcoming broadcasts.)
🌿 https://Intuitive.social/hello/Max 🌻🌿
My name is Max Morris.
I coordinate ongoing Internet radio programming to connect and support survivors of severity who have been cut off from any assistance or community.
We are producing an international public health art and advocacy project called Intuitive Public Radio.
I’m interested to create more multimedia, especially storytelling and sharing opportunities, to connect members of our communities who can’t usually connect.
I am in Pittsburgh. I’d love to get to know others working on projects like these and offer any support I can. If you are listening to the sound of my voice or reading this text, contact me privately by emailing firstname.lastname@example.org or visiting Intuitive.social/hello/Max.
Like others in my network, I am severely disabled from experiences I survived before the coronavirus news started. This is another life-changing experience for all of us.
I’ve been documenting measurable recovery and functions I regain when I prioritize connecting collaboratively in caring community. Resonance, kindness, and shared meaning have wondrous health effects.
USDAC has been working to expand awareness and facilitation of story circles, an effort very close to our hearts at IPR.
Intuitive Public Radio has sought to provide story circle context and opportunities to survivors who are not able to join real-time story circles, and may not have a local community they can safely connect with.
We have also sought to connect many other kinds of communities with the survivors who are members of our community, since many do not know these survivors even exist.
Many of our members have been very sick or severely disabled for years or decades, isolated long-term, cut off from their localities and in-person events, and cut off from online real-time events, too, by their health conditions and extreme circumstances.
Recent events concerning coronavirus have affected them in profound and still too often invisible ways.
If you know of any person or group compiling story circle resources for individuals who are not able to join real-time events or real time Internet meetings, I would love to know about it. We have been working passionately on this for a long time, with hope that we will meet more people already working on it (or wanting to work on it).
If you are listening to our programming and would like to support us, visit Intuitive.community/donations for some ideas how.
You can find our transcripts at Intuitive.pub/text.
Thank you for tuning in!
Wartime medicinal kitchens save the lives of environmental disaster survivors every day.
We are building inclusive, accessible, intuitive, community-serving medicinal kitchens based on the emergent specifications shared by members of our communities.
With the help of Intuitive Public Radio, we are bringing this resource to your neighborhood — asking you and the people you care about what makes your lives better, what foods heal your family, and what you need in your kitchens.
(Hungry? Feel like you need to say something? You’re invited.)
I am working on a public art & advocacy project that includes radio material and other content. (We often refer to this project collectively as Intuitive Public Radio.)
I am a trafficking and environmental illness survivor who for the last number of years has been working to establish ongoing internet radio programming to connect and support survivors of severity who have been cut off from any assistance or community.
Severe circumstances have led to me needing to run a recorder during my conversations with others in order to mitigate ongoing neurological damage from physical trauma and toxic exposure, and for basic recall of details if I am unexpectedly affected by physical and cognitive debilitation.
Cyborgian this way, I can be most effective on behalf of struggling friends and colleagues if I focus my efforts on public radio conversations that increase our resilience and brain function in radio & internet community.
The help we need:
I am in need of ongoing private conversations with individuals and groups who will allow me to compile public radio & art segments from the privately recorded materials.
Both private and public conversations are crucial to the neurological repair, safety, and survival of our community members. One-off conversations definitely help, however — regularly revisiting co-hosts, guests, and subjects will be most supportive for the members of our community who need to rebuild their neurological function in interacting with people who care about them.
(This includes me, as have been continuously pummeled by isolation, physical abuse, and neurological damage; extremely difficult to communicate verbally with others; I am particularly grateful for ongoing relationship building with others at this time. With continual public radio interactions amidst caring community members, my stabilized function returns very quickly.)
Gratitude for conversational opportunities and introductions. I am in scary situations that can be eased easily with more positive social interactions in public. I hope that I can offer support and communicate in a way that allows you to respond or participate.
Thank you for reading | listening.
PS. Links to explore are below. I will make a new post to link here & in the comments with more helpful details. Apologies for my difficulty using digital platforms including Facebook and Facebook messenger, causing some missed Facebook messages.